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Accelerating diagnosis and referral in rare disease X-Linked Hypophosphatemia (XLH)

Awareness and education is critical to reducing diagnostic delay, improving care coordination and providing the best treatment and support to patients with rare conditions.

Our client wanted to impact diagnosis and referral of patients with X-Linked hypophosphatemia (XLH), reaching a broad audience with disease awareness strategies, while supporting peer-to-peer discussion among specialists in a secure network.

Target audience: Endocrinologists, nephrologists, pediatricians, rheumatologists, and general practitioners in Europe and the Middle East (EMEA)


Over two consecutive  12-month programs, we covered pediatric and adult diagnoses with:

  • Educational clinical cases
  • A dedicated discussion group
  • Targeted, segmented omnichannel exposure


At the start of the MedShr campaign only 20% HCPs correctly identified the correct diagnosis – polling at the end showed that 58% of HCPs identified the correct diagnosis

>350,000 Unique HCPs reached

>84,000 Engagements


91% of participants reported an increase in their clinical confidence related to managing patients, and all stated they had implemented learnings from the program in their practice