Rare Disease Education

Accelerating diagnosis and referral in X-Linked Hypophosphatemia (XLH)

This rare disease education program in XLH reached over 350,000 physicians in Europe and the Middle East.
Pre-education polling showed that only 20% of HCPs were able to correctly identify XLH. By the end of the program, 58% correctly diagnosed XLH, an increase of 190%.
91% of participants reported an increase in confidence regarding managing XLH patients, and all stated they had implemented learnings from the program in their practice.

Educational Objectives

Education is critical to earlier identification, referral, and diagnosis.

Awareness and education is critical to reducing diagnostic delay, improving care coordination and providing the best treatment and support to patients with rare conditions.

Our client wanted to impact diagnosis and referral of patients with X-Linked hypophosphatemia (XLH), reaching a broad audience with disease awareness strategies, while supporting peer-to-peer discussion among specialists in a secure network.



Our Approach

Multidisciplinary target audience

To address the educational needs of a broad audience of healthcare professionals, we connected specialists and generalists through case discussion and peer learning opportunities.

  • Endocrinologists, nephrologists, rheumatologists
  • General practitioners / family physicians and pediatricians
  • Europe and the Middle East (EMEA)


Case-based education 

Very few physicians have experience managing patients with rare diseases such as XLH, so case-based medical education is critical to improving diagnosis and management. 

  • Secure, online discussion group, enabling doctors to reflect on cases and ask questions
  • Educational cases designed to help doctors recognize XLH in adult and pediatric patients
  • Targeted omnichannel amplification 

MedShr's medical education programs are tailored, localized, and targeted

Medical Education Case Studies


Society Partnership

MedShr partners with hundreds of national and specialist medical societies to jointly deliver the highest caliber of medical education. To reduce time to diagnosis and accelerate early specialist referral for Duchenne Muscular Dystrophy (DMD), we partnered with the Muscular Dystrophy Association, enabling healthcare professionals from around the world to learn directly from subject matter experts.


Pancreatic Cancer: Insights from KOLs

In pancreatic cancer and other rapidly evolving therapy areas, doctors are faced with an overwhelming amount of data. In this program, we connected oncologists, radiologists and hospitalists in a secure online forum on MedShr to reflect the cases they see in clinical practice. We then invited KOLs to share their insights about the implications of new data on diagnosis and management of patients.


Global Health:
900k HCPs reached 

Online medical education often fails to reach HCPs where it's needed most. With this ground-breaking program, we made a significant impact on patient care in LMICs, with over 903,400 doctors and community health workers engaging with  free, open-access, mobile-first education in malaria, sickle cell disease, leprosy, antimicrobial resistance, ophthalmology, HIV and other high burden conditions. 


MedShr's medical education programs deliver impact.

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