Rare Disease Education
Accelerating diagnosis and referral in X-Linked Hypophosphatemia (XLH)
Educational Objectives
Education is critical to earlier identification, referral, and diagnosis.
Awareness and education is critical to reducing diagnostic delay, improving care coordination and providing the best treatment and support to patients with rare conditions.
Our client wanted to impact diagnosis and referral of patients with X-Linked hypophosphatemia (XLH), reaching a broad audience with disease awareness strategies, while supporting peer-to-peer discussion among specialists in a secure network.
Our Approach
Multidisciplinary target audience
To address the educational needs of a broad audience of healthcare professionals, we connected specialists and generalists through case discussion and peer learning opportunities.
- Endocrinologists, nephrologists, rheumatologists
- General practitioners / family physicians and pediatricians
- Europe and the Middle East (EMEA)
Case-based education
Very few physicians have experience managing patients with rare diseases such as XLH, so case-based medical education is critical to improving diagnosis and management.
- Secure, online discussion group, enabling doctors to reflect on cases and ask questions
- Educational cases designed to help doctors recognize XLH in adult and pediatric patients
- Targeted omnichannel amplification
MedShr's medical education programs are tailored, localized, and targeted
Medical Education Case Studies
Neuromuscular:
Society Partnership
MedShr partners with hundreds of national and specialist medical societies to jointly deliver the highest caliber of medical education. To reduce time to diagnosis and accelerate early specialist referral for Duchenne Muscular Dystrophy (DMD), we partnered with the Muscular Dystrophy Association, enabling healthcare professionals from around the world to learn directly from subject matter experts.
Pancreatic Cancer: Insights from KOLs
In pancreatic cancer and other rapidly evolving therapy areas, doctors are faced with an overwhelming amount of data. In this program, we connected oncologists, radiologists and hospitalists in a secure online forum on MedShr to reflect the cases they see in clinical practice. We then invited KOLs to share their insights about the implications of new data on diagnosis and management of patients.
Global Health:
900k HCPs reached
Online medical education often fails to reach HCPs where it's needed most. With this ground-breaking program, we made a significant impact on patient care in LMICs, with over 903,400 doctors and community health workers engaging with free, open-access, mobile-first education in malaria, sickle cell disease, leprosy, antimicrobial resistance, ophthalmology, HIV and other high burden conditions.
